Avery blog – by a baby sticken with spinal muscular atrophy
Avery is a five months old baby that has been diagnosed with spinal muscular atrophy, which is a genetic disorder that attacks spinal neurons and progressively weakens muscle function. Avery disease was Type I. The doctor have told her parent that their daughter has only 18 months to live.
Her parent, Laura and Mike Canahuati from Houston created a blog dedicate for Avery life called Avery’s Bucket List. The blog written from Avery’s perspective where they chronicle her world and track their family adventures, checking things off from the bucket list as they go.
The bucket list includes milestones in every child’s life from sitting up, kissing her mom and dad, having a birthday party, meeting Santa Claus, loosing a tooth, visiting college and more.
Since published earlier this month, the blog get almost 500,000 page view. SMA is No.1 genetic killer of children under the age of 2 in the US but most people don’t know about it. Avery has already lost the ability to move her legs and can barely move her arms. Doctors saya that she will be unable to move her head or breathe without the help of a respirator.
It is sad if we get a child that won’t life long. But don’t give up. Maybe there’s miracle from God. Hope Avery can get a quality life..